Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Sunday, August 24, 2014




Last weekend I drove 34 miles to the Laemmle Theater in Pasadena because that was the closest theater showing the documentary Alive Inside. I'd heard about the film on NPR, and I knew from the clips and blurbs I saw and read online that I would love it. I did.

Here's the basic premise of the film: Provide era-specific music to dementia patients, then sit back and enjoy the miraculous result.

More specifically: Social worker Dan Cohen (upon whom I now have a pretty serious fan-girl crush), in doing volunteer work with the elderly and Alzheimer's patients, wanted to find a way to connect with those who seemed lost inside themselves. He recognized music as a powerful, evocative force which is universal in its appeal. So he filled up some iPods with music from specific decades, purchased a few sets of headphones, then invited a filmmaker to come along and document his attempt to reacquaint patients with the music of their childhood.

To say the resulting footage is profoundly moving would be an understatement. I knew this film would make me cry; the soundtrack of my own life includes all the pieces I have sung in church, in weddings, in funerals, at sporting events, in the shower, on horseback, on my bike, on a mountaintop, in my classroom and a thousand other places. My mama was a singer as was my sister, and my last good memories of my father before he died center around him singing—even as his life ebbed slowly away. But oh my lord, I first began to tear up just seconds into the movie. One minute past that, tears were streaming down my cheeks. Click here to see the story of Henry.

Dan Cohen's foundation, Music & Memory, is dedicated to bringing music to individuals with Alzheimer's and other dementias. What Cohen and others have found is that music stimulates memory in a positive and healthy way, and that it is far more effectual than medications and other traditional therapies for reaching dementia patients who have previously been unresponsive to treatment. Cohen devotes his time and energy to raising funds through Music & Memory in order to offer iPods and headphones to nursing homes across the country.

Alive Inside is an intensely personal film which depicts human kindness and tenderness in its most raw and authentic form. I came away changed, determined to spend a bit more time with my guitar—and also determined to try to help Cohen's vision reach fruition.

Find this movie and go watch it—even if it means a bit of a drive to get there. Then go hug your grandma (if she's still around). Then go to Music & Memory and make a donation. Then—and only then—sit down with your family and sing a few of your favorite songs. Because you still can.

Here's a link to a beautifully done trailer for the film. It's two minutes long but you may need multiple tissues to get through it:  Alive Inside trailer

Sunday, September 15, 2013

Wherein I misrepresent myself, ambiguously but, nonetheless, intentionally



Today, on my long Sunday morning walk down to 7th & Campus to snag a copy of the L.A. Times, I meandered through the lovely old homes on the Upland side of Highland Court.  Watering his lawn (at 6:30a.m.) was an elderly gentleman with his elderly gentleman dog, a golden retriever that reminded me of TJ Murray.  I asked the man if I could "meet" his dog, something I often do when I see folks out with friendly canines. 

The man looked confused for a moment, then nodded yes.  He continued running water from the hose on his parkway, but made a few remarks about the dog enjoying "new company."  I started to walk on when the man made a comment about the heat we've been having, and I stopped again to respond in kind.  At that moment he looked up from watering and the same look of confusion passed over this face.  Again I began to walk on, and again he attempted to continue the conversation.

"So how have you been?" he asked, and with this question his tone and demeanor changed, became familiar, as if he knew me.
"Oh... fine," I replied, somewhat confused myself by this time.
"How are your kids?" he asked.
"They're great," I answered.
"And the grandkids?" he asked.  "How many are there now?"

At this point, I realized he had mistaken me for someone else.  He clearly had not when I had first begun to walk past on the sidewalk, but for some reason, there came a moment in which his mind slid slightly sideways, and he recognized me--albeit incorrectly--as someone he had known at one time.

For a brief moment, no more than a couple of seconds, I contemplated full disclosure, correcting him in his error.  And then I thought of my mom... and how, just a few times in the last year or so of her life, she failed to recognize people she knew well or mistook them for others.  The truth revealed always humiliated her.  It's bad enough to lose memory; it's another thing entirely when people catch you at it and point it out.

"There are seven now," I told him, which is true.
"Seven!" he exclaimed.  "That's wonderful! And are they all well?"
"They are well indeed," I told him, and then I took my leave, telling him that it was great to see him, and that I would talk with him longer the next time I was out for a walk, but that I wanted to get back home before it got too hot.
"Great to see you!" he called as he went back to watering.


I share this with you now, my friends and family members, as a future request.  I hope that karma is kind... and that when I reach the age at which all the many beloved faces of my lifetime begin to blend into one another, those who know me--or those who are meeting me perhaps for the first time--will be kind.  I don't ask much.  Just... stop and chat with me for a while... whoever you are.